The doctor called me at 5:00pm today. I had been waiting all day for his call. Thankfully he had good news. He said Kenneth’s MRI “did not change significantly from last year.” Thank God.
He asked a lot of questions about how he was doing and specifically wanted to know about any unusual signs of weakness in the right side of his body. I assured him Kenneth was fine and never showed symptoms of weakness on either side of the body. With that said, we still have a question mark about the increased head size. So we’ll see the doctor on Monday as scheduled.
Kenneth is a bright, happy, loving little boy. He just turned 6 and is finishing the school year in a private school in Dallas. He continues to have global developmental delays but is amazing us each day with new ways of communicating and sharing his world. By the grace of God, he grows, blossoms, and touches our lives every day.
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About Me
- Gina
- Dallas, TX, United States
- I'm Kenneth's mom and his voice until he starts talking up a storm!
A Bit of History
June 3, 2004 - Kenneth is born 2 months early and spends 5 weeks in the NICU. He is 4 lbs.
September 2004 - ECI services start. We receive speech, occupational and physical therapy weekly.
October 2004 - We start seeing a developmental pediatrician to track his developmental delays due to prematurity.
November 15, 2005 - We are referred to neurosurgeon for an MRI. Kenneth's head size is off the charts and they discover he has an arachnoid cyst on the entire left hemisphere. Surgery is critical. (Kenneth showed no signs of a cyst when released from the hospital at birth.)
December 19, 2005 (18 mos.) - Kenneth has surgery (crainiectomy)to drain the arachnoid cyst. His recovery is slow but good. We spend a quiet Christmas at home.
April, 2007 - Kenneth is diagnosed by a child psychologist through ECI -- they say he's on the Autism Spectrum. Our developmental ped. concurs.
May, 2007 - ECI services end and we are referred to the school district for autism evaluation and programs.
September 2007 - Kenneth starts Lakewood Elementary's TC program (Total Communication for children with autism).
September 2008 - Kenneth attends his second year at Lakewood. We are excited about his progress over the summer months and at every break he seems to come alive.
January 2009 - Kenneth starts Callier UTD preschool speech program.
July 2009 - Kenneth finishes summer semester at Callier; we miss you guys!
August 2009 - Kenneth starts kindergarten at Truett Elementary! We will continue to pull him out for private therapy sessions during the week and hopefully get him started on some hippotherapy in the late fall.
About Autism Spectrum Disorder (ASD)
Autism is a complex brain disorder that inhibits a person's ability to communicate and develop social relationships, and is often accompanied by extreme behavioral challenges. Autism spectrum disorders are diagnosed in one in 150 children in the United States, affecting four times as many boys as girls. The diagnosis of autism has increased tenfold in the last decade. The Centers for Disease Control and Prevention have called autism a national public health crisis whose cause and cure remain unknown.
(http://www.autismspeaks.org/)
(http://www.autismspeaks.org/)
1 comment:
The Adaptive Child is pleased to announce the upcoming release of our company. Due to our success over the past year, we are expanding our selection to a wider product mix including clinical, therapy and rehab equipment for all individuals from pediatrics to adults. Our niche in the Autism and Pediatric products will remain a primary target as we expand our operations. With the new focus on a broader customer base, we have created a new company to meet this growing need - eSpecial Needs – www.eSpecialNeeds.com. If you could please add eSpecial Needs as a resource and remove The Adaptive Child. Thanks,
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